Tuesday, September 23, 2014

September Pack Meeting

 Today's pack meeting was truly thrilling as it was based on the circus and cooperating to complete amazing feats of great danger and excitement!  The leaders did a great job decorating the cultural hall, and the uni cyclist was really amazing.
 The boys did a quick lesson for the parents on cooperation before doing a few relay races that required teamwork. JD teamed up with Danny Thies to get a balloon from Point A to Point B without using their hands-they did a great job!

 A fuzzy shot, but this is JD with the ringmaster!
 JD received a patch today for completing the cooperation activities as well as a bed for meal planning, cooking, and clean up.  Unfortunately, we realized when we got there that the plastic thingie his beads attach to was no longer on his shirt, so we'll have to replace that and the bead he already had before attaching his second bead.

 JD wanted a picture with the bear, so  I have to include it!
 Overall, it was a super fun evening, and a good release since this week has been emotionally draining with surgery being moved.  We should be in the hospital right now, and while I'm glad for the extra time, it has made yesterday and today super weird.  This smiling face right here makes it a bit better!

Living It Up at the Splash Pad!

What can I say, I love splash pads, James has a ball at them, and Jackson gets a kick out of crawling to the different spouts.  He started doing a bear crawl today to avoid crawling on his knees all the time.  I need to invest in baby knee pads.  Is there such a thing?  I should invent some and get on shark tank.  But I digress.  Nothing too huge about these shots, except there are some really cool images of James throwing water out of a cup-I caught the water in action multiple times, and it just makes for cool images!  I love taking pictures of water splashing, its so neat to me to see something that is normally so fluid with definite shape!  

Oh, and James and Jackson are just joyful, and that is pure awesomeness as well.



 This one is neat in terms of seeing the water path with a downward motion.
 Bounce, bounce!
 This one is my favorite!  Look at that arc!


 Love those formed water droplets!





Journal: Limbo

Yesterday, we felt like we were in Limbo.

We received a phone call from our surgeon's scheduler yesterday morning.  I knew what it was as soon as I heard the message.  So did Jared.  I called back just to confirm it:  James' surgery is being rescheduled.  He is now scheduled for Monday, September 29th at 8am. They told us this was a possibility, but there is no planning for this possibility. You can't mentally plan to MAYBE go in for major heart surgery on a certain day, because if you actually end up going, you will feel ill-prepared.  Its all or nothing.  Unfortunately, that means if it does get moved back, you are in for a train ride of emotions that only leads to Limbo, which is where we live right now, apparently.

The interesting thing is, nothing bad happened.  The scheduler told us a newborn had come in over the weekend and needed surgery asap.  Dr. Nigro, being the renowned surgeon that he is, was needed.  Apparently several folks got bumped around, including James.  If it was my baby, I would want for other parents to be considerate and understanding....and we are.  I know that feeling all too well.  So, nothing bad happened, and I'm so glad that baby will get the help he or she needs.

For us, though, the emotions are strange, enough to just make us feel stuck.

We have been planning for this day.  The arrangements have been made, work situations have been finalized, meals and childcare have been scheduled, and most importantly, our emotions have been fortified.  Thus, when that phone call came, despite my gratitude that our surgeon will be able to help another baby in need, we still felt like a steamroller had plowed over us about ten times in a row.  It was deflating realizing that we now have to anticipate surgery for another week.  Crushing, really.  It is no easy feat accepting that on a certain day, you will have to take your baby to the hospital knowing that you will be audience for one of the hardest speeches a parent has to listen to regarding the risks of heart surgery.  The prospect of staying strong in anticipation of that speech, and so many other things, for another week, is crushing.

While we are struggling to wrap our minds around this change, I do think we handled the day well.  I knew immediately that I had to choose not to focus on the emotions.  I went into hyper mode communicating the change to all necessary parties.  I finalized all the plans in record time for the new surgery date.  I confirmed pre-op testing with the hospital for this Friday.  I finished up a few other cleaning jobs and mentally made a plan for maintaining the cleanliness of the house.  I chatted with James in a very light-hearted manner, asking him how many days until surgery, and when his little finger popped up and he said, "One day!", I gently pulled up 6 fingers and corrected him.  He didn't seem to care; I decided to take my cue from him.

Jared came home early because he felt just as weird as I did-he described it as feeling like he was caught in a stupor of thought....his supervisor told him to leave because it was so obvious how much the change threw him for a loop.  He likes to take care of things to get them done so he can move forward....this was the exact opposite of how he likes to operate, hence why it was difficult for him (amongst other reasons).  He took a nap, worked a little from home, and then we escaped the house to walk the mall with James and Jacks.  We watched the kittens and dogs at the pet store.  We watched James run down the mall corridor with Jacks' blanket wrapped around his neck, sailing out behind him like a superhero cape.  He was joyful, and it was easy to smile despite our sudden flight to Limbo.

Though we probably had a bazillion things to do last night, we opted to forgo all responsible things, and we jumped in the pool, even Jared.  The kids did all their fun dives and jumps for my camera, Jared catapulted the kids in the air into flips and twisted back dives (also for my camera), and he played a simple yet enticing game where the kids had 30 seconds to touch his head.  That's it.  They would try to touch his head, and he would just grab their hands and deflect them away.  He was the victor every time.  That is-until it was my turn.  When the kids started counting, I reached out as if to touch Jared's head, and let him grab my hands as I knew he would....and in that moment, I kissed his cheek, thus winning the game.  He never even saw it coming, but what better way to win that game?  I am so grateful for my family and for my husband who supports me in everything.

The night was hard.  It was as if my brain was still anticipating surgery the next day.  I couldn't sleep.  I was anxious the entire night.  I finally got out of bed at 2:20 am and worked for an hour or so before watching an episode of "What Not To Wear" on Netflix, and drifting off 15 minutes into the second.  I woke up screaming when the sky was just lightening, sure that there was a spider on my blanket....typical night terror for me.  So strange...I knew we weren't going to the hospital, and I thought I had reached a good place about that the day before-I should have been okay with that, and for some reason, my body kept reacting as if anticipating an early morning drive to the hospital with James in tow.  I snuck into James' room and rocked him for a few minutes before dozing off again until the alarm rang.

Today, I feel okay, albeit very nervous about the next 6 days.  I know why, and yet I don't.  I am actively choosing to stay positive and view this as a blessing:  more laughs and giggles, more playing, more bedtime songs, more family prayers, more hugs and kisses.  This morning James and I finished cleaning the toy room, we snuggled together watching Super Why, and I played "If You're Happy and You Know It" on the piano while he did all the actions with great gusto, laughing his head off when Jackson also started clapping.  Had things remained the same, he would have been in surgery at that very moment-and yet, I get to hear his infectious giggle and see those unreal curls.  This can't be a bad thing, right?  We press forward despite the strange context, and live every moment to the fullest.  That's the land we are in, and we keep moving forward.

Monday, September 22, 2014

Oops!

Right when we would have been traveling to the hospital today, James was climbing all over the couches instead, and ended up with a huge fat lip, and teeth marks in his upper gums.  Thankfully he's just fine but still!  Stay in one piece, brother!


Last Swim--I think!

I am pretty sure we had our last swim of the season tonight-the water was definitely cooler, though it felt amazing.  There were lots of ants in the pool and mosquitoes around the perimeter, hence why I think this was probably it.  However, it was probably the funnest swim we have had in a long time, especially since Jared came, and that's not normal for him.  

I already posted a bazillion pictures, but here's a few more that just evidence the joy in the kids' faces.


 He did come swimming after a while, and I covered him in bug spray so the mosquitoes would stay away...I did that when I realized there were, like, 15 of them swarming around his legs!  Thankfully, he came away with only 3 bites.
 This is apparently called the worm.  He literally slides into the pool on his stomach.  I don't get the draw to it, but that's probably because I'm an adult.



 This kid is absolutely crazy in the pool.  He is obsessed with splashing, and does so as if his life depends on it.  He also likes to pull himself up onto that bar or the side of the pool.  He likes his lilly pad well enough, but loves to just sit on the step and have at it with the splashing.



In Motion

This is a true picture reel, but it is cool to see the jumps, flips, and dives in motion!



















 This is the crazy one, JD almost landed on Jared's head, yet sill managed to rotate an entire back flip!



 The last one in this sequence shows Karianna flipping underwater, which is exactly what is supposed to happen if the dive is done right.